Active Secondary Progressive Disease: What It Is and How to Deal With It
If you've been diagnosed with multiple sclerosis (MS), the term "secondary progressive" might have popped up. When doctors add "active" to that label, they're saying the disease is still causing new damage or relapses even though it’s in a progressive phase. In plain words: your nerves are still under attack, and you may notice fresh symptoms or worsening disability.
Why does this matter? Because activity signals that you could benefit from treatments designed to slow down new damage. It also helps doctors decide whether to change meds, add steroids, or try a clinical trial. Knowing the signs early can keep you one step ahead of the disease.
How to Spot Active Disease
Active secondary progressive MS (SPMS) shows up in a few ways:
- New relapses: Sudden flare‑ups that last days to weeks, often with fresh numbness, vision blur, or weakness.
- Rapid progression: Your disability score climbs faster than expected, even without clear relapses.
- MRI clues: New lesions on brain or spinal scans tell doctors the disease is still firing up.
If any of these happen, talk to your neurologist right away. Early action can mean a switch to a more aggressive therapy that targets inflammation and neuro‑degeneration.
Practical Steps You Can Take Right Now
Track symptoms daily. Keep a simple notebook or phone note of any new numbness, fatigue spikes, or gait changes. Patterns become clear faster when you have the data.
Stay on schedule with MRIs. Even if you feel fine, regular scans (usually every 6–12 months) catch silent activity that only shows up on images.
Ask about high‑efficacy drugs. Meds like ocrelizumab, siponimod, or cladribine have shown benefits for active SPMS. Your doctor can explain risks and whether they fit your health profile.
Consider steroids for relapses. A short course of IV methylprednisone can speed up recovery from a flare‑up. It isn’t a long‑term solution but helps reset the system.
Adopt lifestyle habits that support nerve health. Regular low‑impact exercise (walking, swimming), balanced nutrition rich in omega‑3s, and good sleep all give your nervous system a boost.
Lastly, lean on community resources. Support groups—online or local—let you share experiences, hear about new therapies, and stay motivated.
Active secondary progressive disease can feel like a curveball, but recognizing the signs and acting fast puts you back in control. Keep an eye on symptoms, stay on top of imaging, and discuss all treatment options with your neurologist. With the right moves, you can slow down damage and keep living life on your terms.
Financial Planning for Individuals with Active Secondary Progressive Disease
Posted By Kieran Beauchamp On 9 May 2023 Comments (0)
As someone living with an active secondary progressive disease, I understand the importance of financial planning for our unique situation. It is crucial to have a long-term financial plan in place, considering the potential increase in medical expenses and the possibility of reduced income. We should explore various insurance options, including disability and long-term care, to ensure coverage for our needs. Additionally, creating an emergency fund and seeking professional financial advice can provide peace of mind and stability. Remember, being proactive in our financial planning will allow us to focus on managing our health and enjoying life to the fullest.
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